An Apple A Day...
A few weeks ago, I took my oldest son T to a doctor that has just recently started his practice in our area. He is a developmental pediatrician, and currently the only one in our area.
Our concerns started when T was 8.5 years old. Just last week he turned 13. Four and a half years of doctors, tests, evaluations, etc.
We do know the following:
- He had visual tracking and teaming issues which was corrected after a good amount of vision therapy (age 8 - 10 years old)
- He has dyslexia (Diagnosed at age 8. He currently attends a learning center that works specifically with dyslexic kids.)
- He has an anxiety disorder (Diagnosed at age 10, and is kept under control with medication.)
We were also told by a previous doc that he had PDD-NOS (Pervasive Developmental Disorder - Not Otherwise Specified). If you are not familiar with this, it is when a person displays some autistic traits, but not enough to earn a true autism diagnosis. T's school also tested him for this last year and found him not to be PDD-NOS.
After the new doc spent a few hours with T and went through our stack of filled out paperwork, he agreed that T doesn't have PDD-NOS, but rather he suspected a few other things. We are now in the process of having new tests and evaluations done. One of the things that the doc highly suspected was that T might have auditory processing disorder. So I made an appointment with an audiologist and this past Tuesday T underwent that test.
There is no question... he does have auditory processing disorder. When someone talks to T, he can clearly understand the person if it is relatively quiet. However, if there is conversation going on around him, or other noise distractions (buzzing, a distant vacuum cleaner, t.v., etc.) then his comprehension goes way down. It's not that he is hard of hearing... it's the way his brain processes the words coming in that is the problem.
T has a few more evaluations to go through, and then we should have a clearer picture of what we are dealing with.
This is a huge relief to us. Not because he's been released from a PDD diagnosis, but because we feel like we are getting the right help now. I don't care what the diagnosis is as long as it's the right one. If we know what we're dealing with than we can find the best ways to deal with it.
We've been on a roller coaster for the past 4.5 years. We've met some great doctors, and some not so great. We've been given some correct answers, and some wrong. Good advice, and bad. You get the picture.
Warning: Mini Vent Ahead
In meeting with each new doctor, I've always made a point of explaining T's frustration and distractability when it came to background noises and how bothersome they have been to him. Until now, not one of them ever suspected auditory processing disorder. How can this be? I am frustrated and upset at this. But because we now have a correct diagnosis, I am willing to move forward and not play the "why" game.
There are some things that we can do to help T with APD. Unfortunately, it is going to be harder to "re-train" his brain at this point because he is older now. If we would have found this out sooner, it would have been easier. But thankfully his new doc came to our area when he did. Otherwise, more time may have passed by before he was correctly diagnosed.
Our concerns started when T was 8.5 years old. Just last week he turned 13. Four and a half years of doctors, tests, evaluations, etc.
We do know the following:
- He had visual tracking and teaming issues which was corrected after a good amount of vision therapy (age 8 - 10 years old)
- He has dyslexia (Diagnosed at age 8. He currently attends a learning center that works specifically with dyslexic kids.)
- He has an anxiety disorder (Diagnosed at age 10, and is kept under control with medication.)
We were also told by a previous doc that he had PDD-NOS (Pervasive Developmental Disorder - Not Otherwise Specified). If you are not familiar with this, it is when a person displays some autistic traits, but not enough to earn a true autism diagnosis. T's school also tested him for this last year and found him not to be PDD-NOS.
After the new doc spent a few hours with T and went through our stack of filled out paperwork, he agreed that T doesn't have PDD-NOS, but rather he suspected a few other things. We are now in the process of having new tests and evaluations done. One of the things that the doc highly suspected was that T might have auditory processing disorder. So I made an appointment with an audiologist and this past Tuesday T underwent that test.
There is no question... he does have auditory processing disorder. When someone talks to T, he can clearly understand the person if it is relatively quiet. However, if there is conversation going on around him, or other noise distractions (buzzing, a distant vacuum cleaner, t.v., etc.) then his comprehension goes way down. It's not that he is hard of hearing... it's the way his brain processes the words coming in that is the problem.
T has a few more evaluations to go through, and then we should have a clearer picture of what we are dealing with.
This is a huge relief to us. Not because he's been released from a PDD diagnosis, but because we feel like we are getting the right help now. I don't care what the diagnosis is as long as it's the right one. If we know what we're dealing with than we can find the best ways to deal with it.
We've been on a roller coaster for the past 4.5 years. We've met some great doctors, and some not so great. We've been given some correct answers, and some wrong. Good advice, and bad. You get the picture.
Warning: Mini Vent Ahead
In meeting with each new doctor, I've always made a point of explaining T's frustration and distractability when it came to background noises and how bothersome they have been to him. Until now, not one of them ever suspected auditory processing disorder. How can this be? I am frustrated and upset at this. But because we now have a correct diagnosis, I am willing to move forward and not play the "why" game.
There are some things that we can do to help T with APD. Unfortunately, it is going to be harder to "re-train" his brain at this point because he is older now. If we would have found this out sooner, it would have been easier. But thankfully his new doc came to our area when he did. Otherwise, more time may have passed by before he was correctly diagnosed.

